Part of Green Sun’s ongoing mission is to empower and bring together scoliosis warriors from all over the world. To facilitate sharing and normalize patient’s scoliosis stories, we started a social media campaign asking patients and parents to share stories of their scoliosis journeys. The response has been overwhelming. People near and far have been able to share experiences, photos, victories, and questions with us and each other centralizing posts under #mygreensunstory. The campaign has promoted inclusivity and positivity surrounding scoliosis and all its many treatment therapies. Some of the stories received are featured below.
Scoliosis Advocate for Life
I was diagnosed with scoliosis at age 11. My scoliosis progressed quickly and I wore a brace for two years. I ended up needing surgery and now rock the two 18 inch steel rods and 17 screws that’s hold my spine straight!
Since my surgery I have been passionate about giving back to the scoliosis community and helping others who struggle with this condition. I also love to travel, swim and spend time with my family.
My eleven year old, Aly, has been fighting scoliosis for four years. She does her physical therapy twice a day, her supplements, and wears her hard brace at night. She has other health issues that go along with it. It’s definitely been a hard ride for both of us and we are only stronger because of it. She is such an outgoing, full of life child who will move mountains!
This is our daughter Ashlyn who is 11-8 months into bracing – this was her first out of brace X-ray last week – she is a hockey player and our amazing neighbor made her this perfect Hockey girl, scoliosis journey shirt!! This has been hard but we will keep pushing!!
I was diagnosed with scoliosis at age 11. I wore a Boston Brace for 3 years, and then wore a Spine Cor brace for 2 years. My curves were 54° and 63°. I had a spinal fusion at age 16 in Ontario, Canada. Although it was really hard for a while after my surgery, it was totally worth it!
This is my 5 year old daughter whose curve was at 100 degrees when we had our first halo. Since August 2018 she has had two halo traction treatments for 6 weeks a piece in the hospital and 6 spinal rod surgeries.
I was diagnosed with adolescent idiopathic scoliosis when I was 12 without even an X-ray, fast forward 7 months and I had a spinal fusion at Sheffield Children’s Hospital, having convinced myself I was going to die. I now have 2 rods, 2 hooks and 12 screws and I’m fused T3-L2. Four years post op now and I’m in chronic pain with my back as well now (already in chronic pain with legs since the age of 7), and I’m awaiting an appointment with the specialist with the possibility that there is a problem with one of the screws or hooks. I don’t feel my journey is over but i use it to raise awareness and support others
I’ve had 4 surgeries to fix my spinal issues due to scoliosis. I haven’t let anything hold me back! I was a vet tech for 17 years and now I’m a dog groomer. I love working with animals, and I may be a tad slower than others but I’m still doing what I love.
I had my first surgery at the age 15 months old. This picture was the summer of 1987. I had two scoliosis surgeries 8 days apart, I was 10 years old and 9 days before my 12th birthday I had another surgery where I had my Harrington rods put in. I then had a scoliosis surgery at the ages of 25,36 and 38. I’m now 43 years old. I was my doctors youngest patient that he did scoliosis surgery on.