It’s Still My Life
LIVING YOUR BEST WITH SCOLIOSIS
Everyones journey is different, and that’s okay. Consider the following path, as both an approach to your journey, and a way of navigating this site. In taking these steps, you are doing the right thing – Empowering yourself and your loved ones to Live Your Best with scoliosis.
Living your best starts with learning all you can. Knowledge is a powerful force for feeling empowered and being your own, best advocate for your treatment and your life. It will boost you confidence in speaking with your doctors, and trusting your and their judgment.
Taking care of your body includes taking care of your mind. How you feel about your situation, your options, and your future will influence the actions you take and the success of your treatment. We’ve assembled a number of resources to help put your diagnosis into perspective, set positive expectations for your outcome, and motivate you to take action.
You’ve learned all you can, tapped experiences of others like you, and are motivated to take action. These resources will help you evaluate your options and point you in the right direction. Trust your doctor, stick to your treatment plan, and discover the options available to you.
Look for these icons along your path to living your best!
The Anatomy of Scoliosis
What’s the difference between a C curve and an S curve? What does a T3-T11 10 degree curve mean? Do bones change shape? Do you need to know this stuff?
Understanding is a powerful tool towards empowering you, speaking with doctors, understanding your treatment, and taking action!
Get Ahead of
Will you need a brace? Should you wait or take action now? What about surgery? Your doctor is your first line of direction, but knowing what is indicated by a curve degree diagnosis is a great way to get your footing and see the big picture.
The term “Continuum of Care” is often used to frame discussions of treatment options and what actions you might take. Learn more about it here.
Princess Eugenie is proud of her scoliosis scar, and she’s inspiring others to feel the same. The royal used her Instagram stories to post a close-up picture of her back scar. Read about how her followers followed her lead.
One way to stay motivated is to know you are not alone, not the only one going through this, and no physical condition can define who you are. Comfort through shared experience is a powerful thing. Click below for stories that will inspire through honesty.
Scoliosis Advocate for Life
I was diagnosed with scoliosis at age 11. My scoliosis progressed quickly and I wore a brace for two years. I ended up needing surgery and now rock the two 18 inch steel rods and 17 screws that’s hold my spine straight!
Since my surgery I have been passionate about giving back to the scoliosis community and helping others who struggle with this condition. I also love to travel, swim and spend time with my family.
My eleven year old, Aly, has been fighting scoliosis for four years. She does her physical therapy twice a day, her supplements, and wears her hard brace at night. She has other health issues that go along with it. It’s definitely been a hard ride for both of us and we are only stronger because of it. She is such an outgoing, full of life child who will move mountains!
This is our daughter Ashlyn who is 11-8 months into bracing - this was her first out of brace X-ray last week - she is a hockey player and our amazing neighbor made her this perfect Hockey girl, scoliosis journey shirt!! This has been hard but we will keep pushing!!
I was diagnosed with scoliosis at age 11. I wore a Boston Brace for 3 years, and then wore a Spine Cor brace for 2 years. My curves were 54° and 63°. I had a spinal fusion at age 16 in Ontario, Canada. Although it was really hard for a while after my surgery, it was totally worth it!
This is my 5 year old daughter whose curve was at 100 degrees when we had our first halo. Since August 2018 she has had two halo traction treatments for 6 weeks a piece in the hospital and 6 spinal rod surgeries.
I was diagnosed with adolescent idiopathic scoliosis when I was 12 without even an X-ray, fast forward 7 months and I had a spinal fusion at Sheffield Children’s Hospital, having convinced myself I was going to die. I now have 2 rods, 2 hooks and 12 screws and I’m fused T3-L2. Four years post op now and I’m in chronic pain with my back as well now (already in chronic pain with legs since the age of 7), and I’m awaiting an appointment with the specialist with the possibility that there is a problem with one of the screws or hooks. I don’t feel my journey is over but i use it to raise awareness and support others
Bracing for Scoliosis
Scoliosis braces are designed to stop the progression of your curve with the goal of preventing the need for surgery. There are many different approaches to bracing — traditional rigid braces, 3D printed for form and fit, and even flexible braces that allow movement while providing support and corrective forces. Discover options, insight and practices for your best bracing treatment.
Answers to FAQ’s, tips on consulting with your orthotist, advocating for your child, types of braces and therapies, all in one place.
Living Your Life in a Brace
Helpful information to make your journey with bracing as easy and effective as can be. Live your best, brace and all.
Treatments and Therapies
Information on Physical Therapies, why Schroth, how and when it works, proactive core strength PT, chiropractic care, and dermatomes (how pain tells a story).
Green Sun Medical is on a Mission
Green Sun Medical’s vision is to provide a transformative and improved scoliosis treatment experience for children, creating a higher quality of life and better clinical outcomes. The need to improve significantly upon the current rigid plastic brace technology is being demanded by the world’s thought leaders in scoliosis treatment. Green Sun Medical is commercializing a simple, safe solution that can fundamentally impact the overall value of bracing treatment by aiming to improve clinical outcomes, decrease treatment costs and reduce the need for spinal fusion surgeries.